Resources & Education

The Hemophilia Alliance of Orange County works to connect individuals and families living with bleedings disorders to resources that will improve the quality of their life. If you can’t find what you were hoping for, please contact us and we will help to connect you to what you need.

What we can help with:

  • Educational Meetings / Seminars
  • Connecting to a family with a similar experience

  • Community support

  • School Planning
  • Events

  • Insurance challenges

  • Working with your provider

  • Understanding bleeding disorder pharmacies

If you know of a resource that should be listed below, but isn't, please contact us at info@haoc.org.  

Hemophilia Federation of America

(800) 230-9797

www.hemophiliafed.org

The Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community.

National Hemophilia Foundation

(212) 328-3700

www.hemophilia.org

The WFH is dedicated to improving the lives of people with hemophilia and bleeding disorders around the world. One of the WHF’s main goals is improving hemophilia care in developing countries.

World Federation of Hemophilia

(514) 875-7944

www.wfh.org

The WFH is dedicated to improving the lives of people with hemophilia and bleeding disorders around the world. One of the WHF’s main goals is improving hemophilia care in developing countries.

Centers for Disease Control & Prevention

www.cdc.gov/ncbddd/hemophilia/index.html

The Centers for Disease Control and Prevention’s website is a great place to learn the basics about hemophilia and other bleeding disorders. They also are the primary source for current data and statistics related to bleeding disorders, and have a page that links to many great free materials available on the web.

Patient Notification System

1(888) UPDATE U

www.patientnotificationsystem.org

Please sign up for the Patient Notification System (PNS) to be notified directly about the latest recall or withdrawal of recombinant and plasma products. The System is confidential and time sensitive. It is administered by an independent third-party organization and is free of charge.

Insurance Resources

Covered California

www.coveredca.com

Medi-Cal

www.dhcs.ca.gov/services/medi-cal/Pages/default.aspx